Cripto, humanidad y ciencia: la comunidad DeFi se une para financiar la investigación de enfermedades raras del Hankinson Lab
El día de Navidad, Siqi Chen, director ejecutivo de tecnología y padre, recurrió a las redes sociales con una sincera petición de recaudar fondos para la investigación de un tumor cerebral raro y peligroso que afecta a su hija, Mira. Su llamado de ayuda llegó a miles de personas, lo que llevó al lanzamiento inesperado de una criptomoneda que financiará la investigación en Hankinson Lab para combatir enfermedades raras.
" Si pudieras presionar un botón que cura el tumor cerebral de tu hijo a cambio de terminar con tu vida inmediatamente, todos los padres dudarían durante cero segundos antes de luchar por ser los primeros en presionarlo " , escribió Chen en X.
Continuó compartiendo detalles sobre la condición y la investigación en curso, suplicando a sus seguidores y amplificando la urgencia de su solicitud. " Pero siempre hay un movimiento ", añadió mientras pedía a sus seguidores que apoyaran la investigación del Dr. Todd Hankinson en el Laboratorio Hankinson.
Aunque todavía no existe cura, con la ayuda de nuestro equipo de investigación ya hemos ayudado al dr. El laboratorio de Hankinson dent nuevos fármacos prometedores para el tumor de Mira.
pero necesitamos tu ayuda.
Debido a su rareza, ha habido una grave falta de investigación y financiación para esta enfermedad. pic.twitter.com/783fDyTT48
- Siqi Chen (@blader) 25 de diciembre de 2024
Within hours, he had raised $75,000 of his $100,000 goal. Overwhelmed by the response, Chen and his wife pledged to match every dollar beyond the initial target, up to $100,000, potentially bringing the total funds raised to $300,000. “Yi and I are in tears,” Chen shared on X. “We are so grateful to all of you.”
A memecoin rises: MIRA is meant for funding Hankinson Lab’s research
Merely minutes after Chen gave his story and created a GoFundMe account, the crypto community started asking for his digital currency wallet addresses. A cryptocurrency enthusiast created a Solana-based memecoin, $MIRA, to contribute to the fundraising effort.
“Some random guy in 20 minutes made a SOL memecoin called $MIRA to help with research fundraising and sent me half the entire supply,” Chen shared, adding a photo that showcased the coin’s value had already reached $400,000.
uh so some random guy 20 minutes made a SOL memecoin called $MIRA to help with research fundraising and sent me half the entire supply and it's now worth like $400K and i literally don't know what to do because i certainly don't want to rug a bunch of random people https://t.co/P78bLq52fB
— Siqi Chen (@blader) December 26, 2024
Chen then assured his supporters that all proceeds from the coin would go directly to rare disease research. “I intend to sell 10% of my supply sometime today to contribute to Hankinson Lab,” he announced, emphasizing transparency. “I will not sell anything more without announcing 24 hours in advance.”
He went on to create a poll asking the community if he could sell an extra 10%, citing his aim not to “rug” anyone. Chen described the reaction from netizens, who overwhelmingly voted for him to sell the extra tokens, saying it was the “craziest day of his life.”
Chen’s handling of the situation highlighted his commitment to integrity. “I know this is a memecoin. I know this is pump,” he wrote. “But this has exceeded all my expectations already. Once again, $0 of this has or will ever go to me directly…every penny will go to rare disease research.”
Mira’s condition, Adamantinomatous Craniopharyngioma, is an extremely rare and complex tumor. Although benign, its location in a critical area of the brain poses significant risks and is associated with some of the worst quality-of-life outcomes among survivable brain tumors.
over the past few months, yi and i have been working with Dr. Todd Hankinson at the U of Colorado, who runs the only lab in the world focusing on this tumor.
thanks to his research, mira is part of a trial of a biweekly iv that we pray will be able to control tumor growth. pic.twitter.com/Ekhf7fu8lv
— Siqi Chen (@blader) December 25, 2024
Chen revealed that Mira is currently enrolled in a clinical trial led by Dr. Todd Hankinson at the University of Colorado, aimed at slowing the tumor’s growth.
“Dr. Hankinson’s lab is doing groundbreaking work,” Chen stated. “Every dollar raised will go directly to support this critical research.” The CEO’s GoFundMe page reiterated his commitment to transparency, emphasizing that no funds would be retained by his family.
Crypto and DeSci to improve medicine on the rise
Chen’s story highlights a broader movement within the cryptocurrency and biotech sectors: the rise of decentralized science (DeSci). BIO Protocol, a decentralized biotech company, responded to one of Chen’s posts by stating, “Science funding will be one of crypto’s major use cases in the next cycle. DeSci is happening before our eyes.”
Science funding will be one of crypto’s major use cases in the next cycle
DeSci is happening before our eyes
Rare diseases which often get overlooked by pharma are a prime example@endrarediseases is gearing up to launch in early 2025 https://t.co/64ENV7DHIO
— BIO Protocol (@bioprotocol) December 26, 2024
BIO Protocol is a network of Biotech Decentralized Autonomous Organizations (BioDAOs) that fund and develop new therapeutics. The organization’s mission is to address funding gaps in areas such as rare diseases, longevity research, and emerging health challenges.
Binance Labs, the venture capital arm of cryptocurrency exchange Binance, invested in BIO Protocol in November to expand its network and support new projects.
BIO Protocol’s founder, Paul Kohlhaas, has been instrumental in introducing intellectual property non-fungible tokens (IP-NFTs) to the DeSci ecosystem. These tokens enable the sale of scientific, and intellectual property, fostering collaboration and innovation.
One notable project, VitaDAO, focuses on longevity research and has attracted funding from major pharmaceutical companies like Pfizer. Other BioDAOs under the BIO Protocol’s umbrella have achieved significant milestones.
HairDAO became the first DAO to file a scientific patent in December 2023, while VitaDAO funded the launch of Matrix Biosciences earlier that year. BIO Protocol’s network, which includes eight BioDAOs, reached a market cap of $200 million last year.
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